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Pierrerobin Syndrome
Just
a thought of asking about Cochlear implant- My son since birth was diagnosed
to have Pierrerobin Syndrome (recessed chin w/c tends the tongue to ball up
and obstruct air w/c makes breathing very difficult). And later diagnosed to
have a moderate to severe hearing loss (bilateral). My question is... How will
the cochlear implant help my son from hearing? Are hearing aids much better than
the implant in young kids? How risky is the implant to young kids? Hoping to
hear from you soon. Thank you.
Dear Mrs. Rogers
You are certainly doing everything to help Jason, and that includes providing
the best amplification possible for him. You wrote that he has a moderate to
severe hearing loss and you are wondering if a cochlear implant will be beneficial.
Depending on the exact levels of hearing and the frequencies at which Jason
has a moderate loss and a severe loss, a cochlear implant might be helpful.
For example, if he has a 45 dB loss through most tones and a 75 dB loss just
in one high tone, he will probably do well with hearing aids. If his hearing
loss 55 dB in the low tones and 80 dB in the mid and high tones, an implant
could be considered. Since both of these examples are moderate to severe hearing
losses, you can see that they vary greatly. Also, candidacy for an implant is
not just based on audiologic evaluations. The implant team will consider your
child's ability to understand speech with his hearing aids, and they will also
think about his communication skills. There is much to consider.
You asked if hearing aids are better for young children rather than an implant.
Since it is known that children develop their language skills between the ages
of 2 and 3 years, younger children benefit more from the cochlear implant than
older children. In fact, some children as being implanted as young as one year
old now.
Of course there is some risk with any surgery, and you are concerned about that.
In general, cochlear implant surgery has no complications if done by a skilled
surgeon who has experience. And most children return home the same day as the
surgery.
You might want to assess our special paper, "An Introduction to the Cochlear
Implant" which is available on the John Tracy Clinic website. It will give
you some valuable basic information. And talk to your audiologist. Also, if
you can send a copy of Jeremiah's audiologic evaluations both with and without
hearing aids, I can discuss this further with you.
I hope this information has been helpful for you. Please contact me if you have
any more questions.
Sincerely,
Kathleen Sutherland
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